I had a fresh apple the other day. That might not seem like such a big deal, but I haven’t had a fresh apple for more than three years. When I was handed the diagnosis of gastroparesis, I read all the literature the doctor gave me then went looking for more. After several days of much research, I came to the conclusion that the best thing would be to stick to a moderate “flare” diet most of the time. From what I read, it seems that a lot of people are told to eat normally until they flare, then hospital, flare diet, and then back to normal. I understand. Food is a very basic thing and telling people—especially Americans—they can’t eat doesn’t go down well. For my own illness, I made the other choice—to change my eating based on the idea that when you are diagnosed with diabetes they don’t tell you to eat normally until you fall into a coma then change your habits. For me it worked.
Did I cheat? Of course I did. I admit it, pizza found its way in, the occasional veggie cheeseburger and fries and I just put up with the bleh that came after. I did notice, as the years passed, I was getting more sensitive and my bouts of “normal” food were getting further and further apart. Luckily, I was already a vegetarian, so when things went really wacky I could still have tofu and rice and not have the “Ewww, why am I eating tofu” problem. Still, I tried to go on, tried to live as normally as possible.
Then esophageal spasm entered my life. Looking back, I think I’ve had it for far longer than the doctors know. Seeing the symptoms now lets me put two and two together with that clarity of hindsight. Still, when the spasm was official it was another interesting adjustment. Most of the time it just feels like my chest is tight, occasionally it explodes into a fantastic eruption that feels just like a heart attack. And knowing I have esophageal spasm doesn’t change that fact. When you call the doctor or nurse hotline and say “I have chest pain, three nitro have not made it better” they will tell you to go to the ER. It’s probably just spasm, as painful as that is, but it could be my heart. Every time, same thing, and every time I have to go—once even saying no and having the nurse hotline call 911 on me. (How embarrassing is that?)
Back to that apple—you see it marks a new point in my life. Good and bad mixed together in a blender. Yes, a blender. That spasm decided it wanted to get worse, I couldn’t swallow without food popping back up whole. It never made it far enough to be an issue of vomiting, nope, it made it less than halfway down and back it came. Sometimes things made it halfway down and just stayed. When I could no longer get my own saliva down comfortably it was time for something that started with an endoscopy and it ended with my esophagus being physically dilated.
The dilation makes things easier to swallow and for about ten hours I thought it would let me eat a little easier again, but then I discovered that solids would kick off a massive back-to-the-ER spasm. So now it’s a blender. I keep telling myself it’s not a feeding tube. In many ways I am actually “eating” better than I was, thanks to the power of a VitaMix, but it doesn’t feel like a step forward right now. It feels like a step into a scary place of many questions.
I am not even sure I want answers right now. I’m terrified of what they might be, what they might mean. For now, I will settle for the blender and the foods I haven’t had in a long time. It’s something. Small though it may be, it is nonetheless something to help in the dark of night when the “what if” monster comes to call.
Thanks for that update, Muffy. I'm so sorry you're having these symptoms but glad you can eat some "normal" food, even if blended. Stay well, and hopefully out of the ER!
It's one of those blessings in disguise--really well disguised. I am eating better, but it all comes through a straw. It is making travel difficult--there is rarely something I can eat, except at breakfast. At the last con I was at I ended up eating a hot fudge sundae one night because there was NOTHING on the hotel menu I could eat, and the bar had no blender. It's a learning process. Hugs.
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Multum in Parvo means much in little and it describes life so well. I have gastroparesis, esophageal spasm and other issues that offer challenges to my daily life. This is the blog of those days.