How often are we lucky enough to face one of our worst nightmares and come through in one piece? A little while ago, I wouldn’t have considered that lucky, but having faced it—and more to the point, lived through it—I can say I made it. Does it make me less afraid? In some ways it does. I’ve been there, I’ve experienced it, and I am still mostly standing.
When we were last here, I was struggling with the news that I was going to need a feeding tube. I was still resolute in my belief I could make it without one—until I got a new phone. Funny that it would be a piece of technology that would bring everything into such a stark reality but it did. The phone had a calorie counter. I faithfully entered everything I consumed, planning to use it to prove how well I was doing. Only I wasn’t doing well. In fact, I wasn’t doing even close to well.
That led to a doctor’s appointment and the Discussion. The Big One. The feeding tube, and botox in my esophagus in hopes that it would help give me some symptomatic relief from the spasms that were getting steadily worse. So, after talking with my doctor, a wise and caring man, I said yes. It was the hardest thing I’ve done. Once I said yes, things started flying at me. I said yes on a Thursday, the tube was scheduled for Monday. It was so quick, but it was scheduled. I was ready to move on to the next part of my life.
I was nervous as we headed out towards the hospital on Monday. I always am before surgery. When I was a kid, I read a Reader’s Digest story about a woman who had been conscious during surgery. That quickly became one of the top ten things on my “Worst Nightmares” list. I know it’s silly, but every time I am scheduled for a procedure, that article comes back to haunt me. But I comfort myself with the fact I have had several surgeries and nothing even remotely like that has happened.
And then came Monday.
I had a funny feeling things were going wrong when my IV was blown and my hand was red and swelling. However my highly efficient nurse got a new IV started and we were a go. Once into the surgical area, they started giving me sedation. They kept asking if I was feeling relaxed, or sleepy. I kept saying no, and they kept giving me more. Still nothing… Then I felt the cold gel on my belly. I said the sedation wasn’t working. The nurse said he had given me more than most people need. None of that was a comfort when the scalpel cut into me.
My worst nightmare. Awake, someone cutting on me. I screamed. It didn’t stop. Eventually, I was reduced to weeping and asking the nurse to wipe my eyes because the tears bothered me. It was something I could control, so I grabbed onto it and held on though the long nightmare of hell. Time had no meaning. One minute, one hour, one day—it could have been anyone and it would still be an eternity.
It did, finally, end. I was fitted with my new feeding tube and sent up to a room to pass a long, long night. But that’s another part of the story.
I survived. Am I completely untouched by the experience? No, I dream about it. It crops up in my daily life in odd ways. The experience has given me one thing—I have the knowledge of what it feels like, what you think about at a time like that, how you handle the hours after it. I’ve been accused of taking research too far. In this case I agree, but it happened and I can use it. In fact, I will use it. Not just for my writing. I will remember the experience when I feel like I can’t handle something. I made it through one of my top ten nightmares. I can make it through today.
That’s what matters right now—making it through today.
Multum in Parvo means much in little and it describes life so well. I have gastroparesis, esophageal spasm and other issues that offer challenges to my daily life. This is the blog of those days.
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